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The transition from relapsing remitting multiple sclerosis (RRMS) to secondary progressive multiple sclerosis (SPMS) can be difficult to pinpoint and the period of uncertainty can last for 2–3 years.1 It is important that patients are provided with information on the signs of transition, and how these changes in their multiple sclerosis (MS) symptoms can be managed. It is also helpful for those patients already diagnosed with SPMS to better understand how to manage their symptoms and to ensure they remain adequately supported while living with SPMS.
Living well with MS – Managing the change was developed and funded by Novartis Pharmaceuticals UK in collaboration with a UK MS Nurse steering group. It contains a suite of materials to support MS centres with the organisation and hosting of educational sessions for all MS patients who would like to understand more about the course of the disease.
The suite of materials can be downloaded below.
Briefing document
The downloadable briefing document below outlines how these suite of materials can be used.
Slide decks to support HCPs with the delivery of educational sessions for MS patients.
YOUR MS JOURNEY SO FAR
Covering topics such as why MS occurs, how it is diagnosed, what relapses mean and how to manage symptoms.
RECOGNISING PROGRESSION
Covering topics such as what progression means, why progression occurs, how progression is diagnosed and how it can be managed.
LIFESTYLE AND WELL-BEING
Covering topics such as brain health, the importance of exercise and a healthy diet in MS, and the ways in which stress can be managed.
WHAT’S NEW IN MS
Covering topics such as the latest developments and future of MS research as well as participation in clinical trials.
FACT SHEETS
Patient fact sheet for each of the modules, with key information on MS and well-being.
LIVING WELL WITH MS IN PRACTICE
In July we held a meeting in Leeds, where the Nurse team shared their experience of patient education and using Living well in MS in practice.
Download the meeting report below to learn more.
HCP, healthcare professional; MS, multiple sclerosis; RRMS, relapsing-remitting multiple sclerosis; SPMS, secondary progressive multiple sclerosis.
Reference
- Sand I, et al. Mult Scler 2014;20(12):1654–1657.
